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Finding support

Understanding feeding tubes
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A wealth of information and resources about feeding tubes is available online. Visit these websites to learn more:

Online support and resources for European countries

 

België & Nederland (Belgium and Netherlands)

Eerstelijns ondervoedings instituut
www.eoi.nl

 

Belgique et Suisse (Belgium and Switzerland)

Société Francophone Nutrition Clinique et Métabolisme
www.sfnep.org

 

Danmark (Denmark)

Dansk Selskab for Klinisk Ernæring
www.dske.dk

 

Deutschland, Österreich und Schweiz (Germany, Austria, and Switzerland)

Deutsche Gesellschaft für Ernährung e.V.
www.dge.de

 

Deutsche Gesellschaft für Ernährungsmedizin e.V.
www.dgem.de

 

Arbeitsgemeinschaft für Klinische Ernährung
www.ake-nutrition.at

 

Ireland and the United Kingdom

British Association of Parenteral and Enteral Nutrition
An association that provides information on malnutrition and nutrition care.
www.bapen.org

 

Oley Foundation
A group that is dedicated to caring for people with feeding tubes.
www.oley.org

 

Oley Foundation support community
An online support community for the Oley Foundation.
www.inspire.com/groups/oley-foundation

 

PINNT
A support group for people who receive artificial food.
www.pinnt.com

 

Magyarország (Hungary)

Magyar Mesterséges Táplálási Társaság
www.mmtt.hu

 

Norge (Norway)

NSFs faggruppe av sykepleiere i gastroenterologi
www.nsf.no/faggrupper/gastroenterologi

 

Om mat og muligheter ved spise- og svelgvansker
www.spisehjelp.no

 

Suomi (Finland)

Suomen Gastroenterologiahoitajat
www.ge-hoitajat.org

 

Ravitsemusterapeuttien yhdistys ry
www.rty.fi

 

Sverige (Sweden)

Svårigheter att inta vätska och näring – Rekommendation
www.socialstyrelsen.se/nationellariktlinjerforstrokesjukvard/sokiriktlinjerna/svarigheterattintavatskaochnar2

 

Svensk Förening för Klinisk Nutrition och Metabolism
www.swespen.se

 

Online support and resources for the United States and Canada

The American Society for Parenteral and Enteral Nutrition (ASPEN)
An organization that helps people with feeding tubes.
www.nutritioncare.org

 

Canadian Cancer Society
A group that provides information and help for people with feeding tubes.
www.cancer.ca/en/cancer-information/diagnosis-and-treatment/managing-side-effects/tube-feeding-and-total-parenteral-nutrition/?region=on

 

Feeding Tube Awareness Foundation
An organization that provides support and information to people with feeding tubes and their families.
www.feedingtubeawareness.org

 

Gastrointestinal Society of Canada
A group that provides information and help for people with stomach and digestive problems.
www.badgut.org

 

Inspire
A global support community for caregivers and patients, including people with feeding tubes.
www.inspire.com

 

Oley Foundation
A group that is dedicated to caring for people with feeding tubes.
www.oley.org

 

Oley Foundation support community
An online support community for the Oley Foundation.
www.inspire.com/groups/oley-foundation

 

St. Joseph's Healthcare Hamilton (SJHH)
An institution that conducts research and provides information, including a feeding tube guide.
www.stjoes.ca

Words that are included in the glossary appear in blue boldface type.

 

Abdomen

The area of your body that covers your stomach.

Balloon port

An opening in your feeding tube that only your doctor uses. Your doctor uses the balloon port to inflate and deflate the balloon that keeps your feeding tube in place.

Bolster

A round disc on your standard-profile Entuit Thrive feeding tube. The bolster lies against your abdomen on the outside of your body to help keep your feeding tube in place.

Bolus feeding

Taking a large amount of liquid food, usually through a syringe, within a short period of time several times a day.

Catheter-tipped syringe

A device that is used to inject liquid food into your feeding tube for bolus feeding, and to flush your feeding tube with water. This 60 mL syringe has a tapered tip that easily fits into your feeding tube or your feeding set.

Constipation

Being unable to empty your bowels.

Continuous feeding

Taking liquid food by using a pump or a bag to move the food into your feeding tube at a slow, steady rate (for example, over a period of 8-24 hours).

Dehydration

A condition in which your body doesn’t have as much water and fluids as it should have.

Diarrhoea

Having frequent, watery bowel movements.

Feeding port

The opening in your feeding tube where liquid food is inserted.

Feeding set

A special bag that contains liquid food and connects to your feeding tube directly. A feeding set can also connect to a feeding pump.

Flush

To rinse the inside of your feeding tube with liquid.

Formula

A mixture of vitamins and nutrients that your doctor prescribes. You can buy ready-to-use formula, or you can buy powdered formula that you mix with water.

Gastrostomy tube (G-tube)

A type of feeding tube that is placed through the skin of your abdomen and into your stomach.

Gravity feeding

Taking liquid food from a bag that is suspended in the air on a hook or pole. Gravity causes the liquid food to flow into the feeding tube.

Hub

The part of your feeding tube that connects to bolus extension connectors, continuous extension connectors, and syringes.

Leftover liquid food

Liquid food that remains in your stomach from a previous feeding.

Liquid food

Food that is taken through your feeding tube.

Locking adapter

The part of your Entuit Thrive feeding tube that locks.

Medicine port

The opening where you put medicine in your feeding tube.

Plunger

The part of a syringe that pushes water or liquid food into your feeding tube.

Pump feeding

A continuous feeding method in which a pump pushes liquid food through your feeding tube.

Stoma

A hole through the abdomen. This hole leads to the stomach.

Syringe

A device that is used to inject liquid food into your feeding tube for bolus feeding, to flush your feeding tube with water, and to inject medicine into the medicine port of your feeding tube.